Privacy Policy

This Pregnancy Registry is sponsored by Eli Lilly and Company and the site and data are managed by INC Research.

INC Research, LLC (“we”, “us” or “INC Research”) knows that you care how information about you is used and shared, and we appreciate your trust that we will do so carefully and sensibly. We want you to understand the types of information we collect, how we use that information, how we secure it, and how we share it.

This Privacy Policy applies to all Personal Information gathered for and on behalf of INC Research through the various INC Research sites that link or refer to this Privacy Policy (such as any website operated by or on behalf of INC Research, social media pages and HTML-formatted e-mail messages) together with any and all offline sources including sales and marketing activities (collectively, the “Sources”). By using the Sources, you consent to the data collection and use practices described in this Privacy Policy. If you have questions about this Privacy Policy or the protection of your information, please contact us at

The Sources may provide links to or the ability to connect with non-INC Research websites, social networks or applications (“Third-Party Sites”). Clicking on those links or enabling those connections may allow the third party to collect or share information about you. Those Third-Party Sites are beyond INC Research control. We encourage you to check the privacy policies and terms of use of any Third-Party Sites before providing your Personal Information to them.

1. Information We Collect

Through your interaction with and use of the Sources, INC Research may collect Personal Information, which is information that identifies an individual or relates to an identifiable individual. Personal Information may include, but is not limited to, your name, physical address, telephone number, e-mail address, company affiliation and associated interests.

INC Research may also collect other information through your interaction with and use of the Sources, which does not reveal your specific identity or does not directly relate to an individual. This other information may include, but is not limited to, browser and device information, data collected through automated electronic interactions, application usage data, demographic information, geographic or geo-location information, statistical and aggregated information.

Statistical or aggregated information does not directly identify a specific person, but it may be derived from Personal Information. For example, we may aggregate Personal Information to calculate the percentage of users in a particular zip code.

In some instances, we may combine Personal Information with other information, such as combining a precise geographical location with your name. If we combine Personal Information with other information, we will treat the combined information as Personal Information.

2.  How We Collect Information

INC Research collects information in a variety of ways that fit broadly into the following general categories:

Cookies:  "Cookies" (which may be html files, Flash files or other technology) are text files that help store user preferences and activity. "Web beacons" (also known as image tags, gif or web bugs) are small pieces of code used to collect advertising data, such as counting page views, promotion views or advertising responses. The Sources and/or third parties may use “cookies”, “web beacons” and other similar tracking technologies (collectively, “Tracking Technologies”) to collect information from you automatically as you use the Sources, browse INC Research websites and the web.

Other Tracking Technologies:  We use Tracking Technologies to help tailor our content, understand website and internet usage, improve or customize the content, offerings or advertisements through the Sources, personalize your experience with respect to the Sources (for example, to recognize you by name when you return to an INC Research website), save your password in password-protected areas, save your online video player settings, help us offer you programs or services that may be of interest to you, deliver relevant advertising, maintain and administer the Sources and for other purposes described in the "Uses of Information".

These Tracking Technologies collect “click stream” data and information regarding your use of the Sources, such as your visits, use of our features, and preferences and may also collect your IP address or some other identifier unique to the device you use to access the Sources (“Identifier”). Your Identifier may be automatically assigned to the device you use to access the Sources. By using the Sources, whether as a registered user or otherwise, you acknowledge, understand and hereby agree that you are giving us your consent to track your activities and your use of the Sources through these Tracking Technologies.

INC Research’s use of Automated Interactions may change over time as technology evolves. The descriptions above are designed to provide you with some detail about INC Research's current approach to information collected from Automated Interactions.

3.  Use of Information


We use Personal Information and other information collected to (a) allow you to participate in the public areas and/or other features of the INC Research websites; (b) respond to your questions or other requests; (c) contact you regarding your use of the Sources, for informational purposes related to the Sources or, in our discretion, regarding changes to this Privacy Policy or related policies; (d) improve the Sources and for internal business purposes; (e) tailor your experience of the Sources and/or otherwise customize what you see when you use the Sources; and (f) otherwise to maintain, operate and administer the Sources and for other purposes disclosed at the time you provide the information.

Disclosure to Third Parties

In addition to aggregate information (discussed previously), we may share some kinds of Personal Information with third parties as described below.

While we cannot guarantee that such third parties will maintain the privacy of your information, we are potentially liable in cases of onward transfer to third parties of data of EU individuals received pursuant to the EU-US Privacy Shield.

4.  Sharing of Non-identifiable Information

Information we collect that is not Personal Information or Personal Information that has been converted to information which cannot be used to identify you is not limited in any way by this Privacy Policy and can be used and disclosed by us in any manner and for any purpose.

5.  Protection of information

The security of your Personal Information is very important to INC Research. We use commercially reasonable physical, electronic, and administrative safeguards that are designed to protect your Personal Information from loss, misuse and unauthorized access, disclosure, alteration and destruction. However, regardless of our efforts and the device you use to access the Sources, it is possible that third parties may unlawfully intercept or access transmissions or private communications over an unsecured transmission.  In the event that your Personal Information is acquired, or is reasonably believed to have been acquired, by an unauthorized person and applicable law requires notification, INC Research will notify you by e-mail, fax, or U.S. mail. INC Research will give you notice promptly, consistent with the reasonable needs of law enforcement and/or INC Research to determine the scope of the breach and to investigate and restore the integrity of the data system.

6.  Your Privacy Choices

Personal Information Opt-Out

You may elect not to have your personal information either (a) disclosed to a third party, or (b) used for any purpose materially different from the third parties or purpose(s) stated within this Privacy Policy. In the event you wish to restrict your personal information from any such disclosure or use, please contact us at to review your request.

Informational/Promotional Email Opt-out

You may have an opportunity to elect to receive recurring informational/promotional e-mail from us. Our email correspondence will include instructions on how to update certain personal information and how to unsubscribe from our emails. Please follow the instructions in the emails to opt-out of an email. We will unsubscribe you from that newsletter or other programs within thirty business days.

You can always contact us at in order to change your preferences with respect to marketing contacts.

7.  Children's policy

We are committed to protecting the privacy of children. We do not collect personally identifiable information from any person we actually know is under the age of 18.  If we learn that we have collected personal information from a person under age 18, we will delete that information as quickly as possible. If you believe that we might have any information from a person under age 18, please contact us at

8.  Changes to this Privacy Policy

We may update this Privacy Policy occasionally. When we post changes to this Privacy Policy, we will also revise the “Last Updated” date at the end of this Privacy Policy. If there are material changes to this Privacy Policy, we will notify you by email or by means of a notice on our home page. We encourage you to review this Privacy Policy periodically to be informed of how we are using your information and to be aware of any changes to the Privacy Policy. Your continued use of the Sources after the posting of any amended Privacy Policy shall constitute your agreement to be bound by any such changes. Any changes to this Privacy Policy are effective immediately after being posted by us.

9.  Notice for California Users

Under California’s “Shine the Light” law, California residents have the right to request in writing from businesses with whom they have an established business relationship (1) a list of the categories of personal information, such as name, address, e-mail address, and the type of services provided to that customer, that a business has disclosed to third parties (including affiliates that are separate legal entities) during the immediately preceding calendar year for the third parties’ direct marketing purposes, and (2) the names and addresses of all such third parties. To request the above information, please email us at

or write to us at:

Privacy Officer
INC Research, LLC
Attn: Data Privacy Officer
3201 Beechleaf Ct
Raleigh, NC 27604

We will respond to such written requests within 30 days following receipt at the mailing address above. We reserve the right not to respond to requests submitted other than to the address specified above or otherwise exempted by law. Please note that we are required only to respond to each customer once per calendar year.

10.  Access, Correction, and Updates

You may request to review, correct, update, delete, or otherwise modify any of your Personal Information that you have previously provided to us through the Sources, or object to the use, disclosure or processing of such Personal Information by us. If you have privacy concerns about your Personal Information, please contact our Global Privacy Officer at:


Attn: Data Privacy Officer
3201 Beechleaf Ct
Raleigh, NC 27604

In your request, please make clear what Personal Information you would like to have changed, whether you would like to have your Personal Information that you have provided to us suppressed from our database or otherwise let us know what limitations you would like to put on our use of your Personal Information that you have provided to us.

While the majority of questions and issues related to access can be handled quickly, complex requests may take more research and time. In such cases, issues will be addressed, or you will be contacted regarding the nature of the problem and appropriate next steps, within thirty days.

11. Retention and Deletion

INC Research will retain your Personal Information for as long as your account is active; as needed to provide you products or services; as needed for the purposes outlined in this Privacy Policy or at the time of collection; as necessary to comply with our legal obligations (e.g., to honor opt-outs), resolve disputes, and enforce our agreements; or to the extent permitted by law.

At the end of the retention period, INC Research will delete your Personal Information in a manner designed to ensure that it cannot be reconstructed or read.

12. Cross Border Transfers and EU-U.S. Privacy Shield

INC Research is a global corporation with operations in over 47 countries, and has developed global data practices designed to assure your Personal Information is appropriately protected. Please note that your Personal Information may be transferred, accessed and stored globally as necessary for the uses stated above in accordance with this Privacy Policy. By using the Sources, you consent to the transfer of information to countries outside of your country of residence, which may have different data protection rules than those of your country.

Privacy Shield

INC Research has certified its participation with the EU-U.S. Privacy Shield program by adopting the Privacy Shield Principles to its Data Privacy policies and practices. INC Research is committed to subject to the Privacy Shield Principles all Personal Information it receives from the EU in reliance of the Privacy Shield. You may find INC Research’s certification to the Privacy Shield at

Related to its participation in the Privacy Shield program, INC Research is subject to the investigatory and enforcement powers of the Federal Trade Commission (FTC).  If you are in the EU, have a complaint about the collection or use of your Personal Information and would like to seek an independent recourse mechanism, you may contact your local Data Protection Authority (DPA). A listing of each EU country’s DPA may be found here:  INC Research will cooperate in investigations by and to comply with the advice of the panel established by the applicable DPA in the event of your complaint. Further, you may seek the possibility, under certain circumstances, for binding arbitration to resolve your complaint.

13. Sensitive Information

Except as specifically requested by the Registry, we ask that you not send us, and you not share any sensitive Personal Information (e.g., Social Security numbers, information related to political opinions, religion or other beliefs, health, criminal background or trade union membership).

14. Site Content

INC Research makes no representations about the content of the information on this website. The information presented on this website is provided to you “AS IS”, WITHOUT ANY WARRANTY, IMPLIED OR EXPRESSED, INCLUDING BY WAY OF EXAMPLE BUT WITHOUT LIMITATION, ANY WARRANTY OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, OR OTHERWISE.

15. Questions & Concerns

If you have any questions or concerns about this Privacy Policy or INC Research’s collection and use of your Personal Information, you can contact our Global Privacy Officer at:


ATTN: Data Privacy Officer
3201 Beechleaf Ct
Raleigh, NC 27604

Last updated: August 25, 2016